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The Encephalitis Podcast

The Encephalitis Podcast

Encephalitis International 71 episodes Latest Jun 1, 2026

A podcast from Encephalitis International that explores all aspects of encephalitis, an inflammation of the brain. It provides information and insights for patients, caregivers, and medical professionals. The show aims to raise awareness and offer support through expert interviews and personal stories. For more details, visit the Encephalitis International website.

Episodes

Ep 72 - What Encephalitis Took and What Recovery Gave Back - Evie's Encephalitis Story Jun 1, 2026 2116 As part of Volunteer Week, we’re sharing the powerful story of Evie, who developed autoimmune anti-NMDAR encephalitis at just 19 years old. What began with flu-like symptoms quickly became seizures, hallucinations, psychosis, memory loss, and months in hospital. In this deeply honest conversation, Evie opens up about surviving encephalitis as a teenager, losing her sense of identity, struggling to
Ep 71 - Returning to School After Encephalitis - A Parent’s Journey with Hina & Dian May 21, 2026 1232 In this episode, Prav speaks with Hina about her son Dian’s journey with autoimmune encephalitis and the challenges of returning to school after a life-changing diagnosis. After Dian began experiencing seizures at just seven years old, Hina and her family faced a long and emotional journey through hospital testing, uncertainty, memory difficulties, and major changes in daily life and more recently
Ep 70 - Inside 'Unconquered' A Powerful West Nile Survivor Story Apr 22, 2026 2837 The Encephalitis Podcast Ep 70 In this special episode of the Encephalitis Podcast for World Immunization Week, we spotlight West Nile encephalitis through the powerful short film Unconquered: Battling Back After West Nile Virus. Host Prav is joined by Tom, a West Nile encephalitis survivor, and Shawn, filmmaker and CEO of SES Productions, who brought Tom’s story to life on screen. Tom shares his
Ep 69 - Surviving Tick-Borne Encephalitis: Bill’s Story & Why Vaccination Matters Apr 22, 2026 2760 The Encephalitis Podcast Ep 69 In this episode of the Encephalitis Podcast, Prav speaks with Bill, an endurance athlete who shares his powerful journey through tick-borne encephalitis (TBE). From competing in swimrun events across Nordic countries to facing severe neurological symptoms and a long recovery, Bill’s story highlights how unexpected and serious this virus can be. As part of World Immun
Ep 68 - Complete Your Vaccination Course: A Key Step in Preventing Encephalitis - with Prof Lance Turtle Apr 22, 2026 858 The Encephalitis Podcast Ep 68 In this episode, we explore why completing your full vaccination schedule is essential for protecting against encephalitis.  Prav is joined by Professor Lance Turtle, an expert in infectious diseases, who explains how vaccines work, why multiple doses matter, and the risks of stopping after just one shot. Learn how vaccines not only protect individuals but also help
Ep 67 - Could dexamethasone improve HSV encephalitis outcomes - with Professor Tom Solomon CBE Apr 17, 2026 1520 Ep 67 - In this episode of the Encephalitis Podcast, Prav speaks with Professor Tom Solomon CBE, a leading neurologist and infectious disease expert, about the groundbreaking DexEnceph study - two decades in the making. Discover how this UK-wide clinical trial explored whether dexamethasone (a corticosteroid used to treat various inflammatory conditions) could improve outcomes in herpes simplex vi
Ep 66 - Global Encephalitis Training: Saving lives in low-resource settings with Dr. Aline Matos Apr 2, 2026 1027 In this episode of the Encephalitis Podcast, Prav speaks with neurologist Dr. Aline Matos about the development of global training modules designed to help clinicians diagnose and treat encephalitis -especially in low-resource settings. They explore why encephalitis is often missed or misdiagnosed, the life-changing consequences of delayed diagnosis, and how these practical modules empower clinici
Ep 65 - Understanding MOG Antibody-Associated Encephalitis with Dr. Matteo Gastaldi Mar 27, 2026 626 What is MOG antibody-associated encephalitis, and how does it differ from other types of autoimmune brain inflammation? In this episode of The Encephalitis Podcast, Prav speaks with Dr. Matteo Gastaldi, neurologist and Head of the Neuroimmunology Research Unit in Pavia, Italy. Together, they explore MOG antibody-associated disease (MOGAD), including how it presents in children and adults, symptoms
Ep 64 - Parenting after encephalitis with Dr Freddie Byrne Mar 14, 2026 3289 The Encephalitis Podcast Ep 63 In this episode, Prav is joined by Dr. Freddie Byrne, clinical psychologist and Clinical Director of Living with ABI Limited.  Together they explore the realities of parenting after encephalitis and acquired brain injury (ABI), including changes in family roles, the impact on children’s well-being, trauma, and post-injury growth. Drawing on over a decade of experienc
Ep 63 - F.L.A.M.E.S. - The Life-Saving Encephalitis Acronym with Dr Nicholas Davies Feb 19, 2026 864 Encephalitis Podcast Ep 63  In this episode of The Encephalitis Podcast, Prav is joined by leading neurologist Dr Nicholas Davies to introduce F.L.A.M.E.S., a new life-saving acronym designed to help the public and healthcare professionals recognise the urgent symptoms of encephalitis. ------------------------------------------------------------------------------------------- If you have been affe
Ep 62 - Contagion on Screen: Science, Storytelling, and Encephalitis with Scott Z. Burns Jan 30, 2026 3120 Encephalitis Podcast Ep 62 In this episode of the Encephalitis Podcast, Prav is joined by award-winning screenwriter and director Scott Z. Burns to discuss the depiction of encephalitis in films and explore the science, humanity, and lasting impact of the 2011 film Contagion. Inspired by real-world viruses such as Nipah and SARS, the film gained renewed relevance during the COVID-19 pandemic for i
Ep 61 - Emotions, pain and unspoken dreams - Denis' Encephalitis Story Jan 21, 2026 2212 In this powerful and emotive podcast episode Denis shares his journey of living with viral encephalitis from his life as an aeronautical engineer through the sudden onset of illness, hospitalisation, and a long, complex recovery. He discusses memory loss, intense emotions, vivid and distressing 'encephalitis dreams'. Denis also explains the coping strategies, psychological support, and practical t

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