On the tip of my tongue - talking about Aphasia
Jonathan Hirons shares his personal journey after suffering a stroke and being diagnosed with aphasia. He discusses the challenges he faced with speaking, reading, and writing, as well as the support from his family. The podcast aims to raise awareness and provide insights into living with aphasia.
Episodes
Aphasia Awareness Month Q&A: Myths, Carer Support, Recovery, and the Future
Send us Fan MailAphasia Awareness Month Q&A: Myths, Carer Support, Recovery, and the FutureDuring Aphasia Awareness Month, the podcast hosts a Q&A on aphasia—an often overlooked language disorder affecting speaking, understanding, reading, and writing, commonly after stroke or brain injury—with more than 350,000 people living with it in the UK. Guest Ann Hirons shares a carer’s perspective
Speak Up for Aphasia: A Global Awareness Campaign Update
Send us Fan MailSpeak Up for Aphasia: A Global Awareness Campaign UpdateGuest Claire Bennington updates on fundraising for an international aphasia awareness campaign creating a suite of animated videos in multiple languages, launched worldwide with one consistent message. The Tavistock Trust for Aphasia has pledged £35,429 if matched; the campaign is at 57% (about £22,304/42,000 AUD) and aims to
Life Beyond Aphasia: Supporting Care Partners and Building a Movement
Send us Fan MailHosts Rob Edwards and Jonathan Hirons introduce guest, Genevieve Richardson, a US speech-language pathologist, focuses on supporting “care partners,” arguing recovery improves when caregivers receive training and support to prevent burnout. They compare UK and US support systems, discussing variability in access, the role of insurance and advocacy, and the importance of in-person a
Hanka Mayhew: The Multilingual Advocate for Aphasia Awareness"
Send us Fan MailHanka Mayhew: A Polyglot’s Journey Through Aphasia and AdvocacyHanka Mayhew lived in Spain for 11 years with her husband and three children, speaking five languages and working as an English teacher and translator until a massive brain bleed left her with aphasia and unable to speak. After three months in hospital in Spain and three in England, she spent a year in a wheelchair rele
Finding Words: AI and Aphasia
Send us Fan MailIn this episode of 'On the Tip of My Tongue,' hosts Rob Edwards and Jonathan Hirons with guest Dr. Abi Roper explore how artificial intelligence can assist people with Aphasia in finding their voices again. The discussion covers the ways AI aids in simplifying text, improving written communication, and developing speech recognition technologies. The episode features Jez H
Bridging the Gap: AI and Aphasia with Dr. Abi Roper
Send us Fan MailIn this episode of 'On the Tip of My Tongue,' hosts Rob Edwards and Jonathan Hirons delve into the world of AI and its applications in treating Aphasia, a debilitating condition affecting language abilities, following brain injuries like strokes. Joining them is Dr. Abi Roper from City, St. George's University, London. Dr. Roper discusses how AI tools, like speech re
Understanding Aphasia: Personal Stories and Community Support
Send us Fan MailIn this episode, Rob Edwards and Jonathan Hirons host Chris Greenhough, a stroke survivor with aphasia who leads support groups, and Lisa Thomas, a senior speech and language therapist with the NHS. They discuss the impact of aphasia, a condition affecting the brain's language capabilities, and the importance of community support and therapy. Chris shares his journey of recove
AI and Aphasia: Overcoming Communication Barriers - S3 Ep 8 with Jez Hodgkinson
Send us Fan MailAI and Aphasia: Overcoming Communication BarriersIn this episode of 'On the Tip of My Tongue' podcast, Jez shares his personal journey with Aphasia following a severe stroke in 2016. He discusses the challenges he faced in communicating and how he overcame them by starting a local Aphasia support group during the COVID-19 pandemic. Jez also delves into his long-standing i
On the tip of my tongue Series 3 Episode 7 - "Therapy Notes: Elizabeth Nightingale"
Send us Fan MailTransformative Power of Music Therapy with Elizabeth NightingaleIn this podcast episode of 'On the Tip of My Tongue,' hosts Rob Edwards and Jonathan Hirons are joined by Elizabeth Nightingale, a neurological music therapist. The discussion delves into the impactful role of music therapy across various fields, including stroke recovery, pediatrics, and palliative care. Eli
International Aphasia Awareness Campaign with Claire Bennington
Send us Fan MailInternational Aphasia Awareness Campaign with Claire BenningtonIn this episode of 'Tip of My Tongue,' hosts Rob Edwards and Jonathan Hirons speak with Claire Bennington, chairperson of the Australian Aphasia Association and an experienced speech and language therapist. Claire shares her extensive experience working with adults with Aphasia, details her involvement with th
Robert Baldock's Voice of Recovery, Music and Aphasia
Send us Fan MailOvercoming Aphasia: Robert Baldock’s Journey and AdvocacyThis episode of 'On the Tip of My Tongue' features Robert Baldock, a Scottish-based composer and new media artist who experienced a severe ischemic stroke in 2017, resulting in acute aphasia and severe verbal dyspraxia. Robert shares his journey through his stroke, the challenges he faced with communication, and his
Life in the key of Aphasia - Graham Hall
Send us Fan MailJoin us as Graham Hall shares his inspiring journey through music and Aphasia in our newest episode of "On the Tip of My Tongue". Learn how his passion for percussion and songwriting helps him overcome challenges. Listen today! 😊 #Aphasia #MusicHealing #PodcastLiving with Aphasia: A Journey Through Music and RecoveryRob Edwards and Jonathan Hirons discuss the impact of Ap
The Aphasia Awareness Month Special
Send us Fan MailAphasia in Popular Culture and Awareness: Exploring the Silent StruggleIn this episode of 'On the Tip of My Tongue,' hosts Rob Edwards and Jonathan Hirons delve into the world of Aphasia—a condition caused by brain injury that significantly impacts communication abilities. They discuss its portrayal in popular culture, specifically referencing a character with Aphasia in
Navigating Conversations with Aphasia: Insights from Iain Stansfield
Send us Fan MailNavigating Conversations with Aphasia: Insights from Iain StansfieldIn this episode of 'On the Tip of My Tongue,' hosts Rob Edwards and Jonathan Hirons explore the intricacies of living with aphasia through a conversation with Iain Stansfield and Dr. Suzanne Beeke. Iain shares his personal journey following a stroke, emphasising the challenges of communicating with aphasi
Dan's Journey: Triumph Over Aphasia
Send us Fan MailDan's Journey: Triumph Over AphasiaIn this episode of 'On the Tip of My Tongue,' hosts Rob Edwards and Jonathan Hirons delve into the life of Dan Sutton, who suffered severe head injuries from a cycling accident in 2016. These injuries resulted in Aphasia and mobility challenges. Despite his struggles, Dan founded the Minds Over Matter Social Group to create a suppor
Breaking Barriers: Disability Awareness and Inclusion with Sarah Petherbridge
Send us Fan MailBreaking Barriers: Disability Awareness and Inclusion with Sarah PetherbridgeIn this episode of 'On the Tip of My Tongue,' hosts Rob Edwards and Jonathan Hirons discuss the challenges and misconceptions surrounding disabilities, particularly aphasia. They are joined by Sarah Petherbridge, a disability trainer and speaker who shares her experiences of living with profound
Resilience and Recovery: Talia Lazarus' Inspiring Journey
Send us Fan MailIn this episode of 'On the Tip of My Tongue,' hosts Rob Edwards and Jonathan Hirons welcome Talia Lazarus, a presenter, broadcaster, and host of the mental health podcast, 'I Got Back Up.' Talia shares her harrowing story of a devastating electric scooter accident in 2021, which resulted in serious leg injuries and an 18-month rehabilitation journey. She discuss
Brain Injury and Returning to Work - Tamsin Keyes of Headway
Send us Fan MailUnderstanding Acquired Brain Injuries: Challenges and Support Systems plus Returning to WorkIn this episode, Jonathan interviews Tamsin Keyes, the Publications and Research Manager at HEADWAY, the Brain Injury Association. Tamsin provides an in-depth explanation of what constitutes a brain injury, ranging from traumatic incidents to medical complications like strokes and aneurysms.
Bring on the nouns - Graham Hall's take on Aphasia
Send us Fan MailOvercoming Aphasia: The Journey of Graham HallIn this episode of 'On the Tip of My Tongue,' hosts Rob Edwards and Jonathan Hirons discuss aphasia with Graham Hall, an orchestral percussionist who suffered a stroke a decade ago. Graham shares his experiences dealing with aphasia, its impact on his career, and the challenges of regaining his speech and musical abilities. De
Overcoming Aphasia - Nigel Cheffers-Heard and Paula Fernley
Send us Fan MailSurviving Stroke and Navigating Aphasia: Nigel's StoryThis podcast episode titled 'On the Tip of My Tongue' features Rob Edwards and Jonathan Hirons discussing aphasia, a language impairment often caused by a stroke or brain injury. They interview Paula Fearnley and Nigel Cheffers-Heard to hear Nigel's journey of recovering from a stroke that resulted in aphasia
Emma Rich: Battling Aphasia and Advocating for Neuro Rehab
Send us Fan MailEmma Rich: Battling Aphasia and Advocating for Neuro RehabIn this episode, Emma Rich, Charity Coordinator at Say Aphasia, shares her harrowing journey with severe brain injury and subsequent aphasia. She recounts her critical medical emergency, rehabilitation experiences, and the crucial role of neuroplasticity in her recovery. Emma discusses the importance of speech therapy, commu
Hidden Voices: Reflections on Aphasia and Care 2024 Round up
Send us Fan MailOvercoming Aphasia and the Importance of CarersIn this episode, the host reflects on past events and highlights key themes such as surviving a critical health incident in Las Vegas, the significant role of communication in recovery from strokes, and the challenges and strategies for living with aphasia. The episode also emphasizes the importance of unpaid carers, their economic con
Lifting the Fog: Colin Lyall's Journey with Aphasia
Send us Fan MailJourney Through Aphasia: An Interview with Colin LyleIn this episode of the On the Tip of My Tongue podcast, Colin Lyle, founder of the Say Aphasia charity, shares his powerful journey from experiencing a stroke and developing aphasia to actively supporting others with the condition. Colin talks about his stressful lifestyle that led to his stroke, the challenges he faced during re
Clip of On the tip of my tongue Series 2 Episode 3 - Dr Suzanne Beeke
Send us Fan MailSupport the showSupport the show: Donate NowThis podcast is funded by https://www.bas.org.ukTo watch Jonathan’s film: https://tipofmytonguefilm.comYouTube: https://www.youtube.com/@tipofmytonguefilmLinkedin: https://www.linkedin.com/in/jonathanhirons/Instagram: https://www.instagram.com/tipofmytonguepodcast/X: http://x.com/buffaloloungeukThe Tavistock Trust f
On the tip of my tongue Series 2 Episode 5 - Colin Lyall founder of Say Aphasia
Send us Fan MailRebuilding Lives After Stroke: Colin Lyle's Journey with AphasiaIn this episode of the Tip of My Tongue podcast, Colin Lyle, founder of the Say Aphasia charity, discusses his personal journey with aphasia following a stroke 11 years ago. Colin shares details about his former stressful career, his initial denial about the severity of his condition, and the extensive speech and
"Inside Speech Therapy with Derek Munn"
Send us Fan MailUnderstanding the Role of the Royal College of Speech and Language TherapistsIn this episode of the 'Tip of My Tongue' podcast, host Jonathan and Rob engage in a detailed conversation with Derek Munn, the Director of Policy and Public Affairs at the Royal College of Speech and Language Therapists. Munn shares insights on his role, which involves working with UK government
Better Conversations with Aphasia with Dr Suzanne Beeke
Send us Fan MailBetter Conversations with Aphasia: In-Depth with Dr. Suzanne BeekIn this episode, Dr. Suzanne Beek, Associate Professor of Language and Cognition at UCL, discusses her innovative therapy called Better Conversations with Aphasia. She explains how aphasia, a communication difficulty often resulting from stroke, affects conversations and the simple strategies her program employs to im
Life, Aphasia, and Leadership - Pete Coady, Say Aphasia Darlington
Send us Fan MailOvercoming Aphasia: Pete Cody's Journey and Community ImpactIn this episode, we talk to Pete Cody, a former Mondelez Cadbury salesman who became a peer leader for Say Aphasia after a serious car accident left him with aphasia. Pete discusses the challenges he faced transitioning from a high-paced sales job to living with a communication disorder, and how he found purpose by ru
Tom's Journey: Brain Injury and Recovery - Tom Ryan-Elliott
Send us Fan MailOvercoming Trauma: Tom Ryan Elliott Talks Aphasia, Epilepsy, and Workplace ChallengesIn this episode, we talk to Tom Ryan Elliott, who suffered a severe brain injury in 2014 leading to aphasia and epilepsy. He recounts his experience of how a work event in Las Vegas dramatically changed his life, leaving him in a coma and resulting in long-term disabilities. The discussion focuses
On the tip of my tongue: Series 1 Episode 6 - What we have learned so far...
Send us Fan MailReflecting on the Journey: Uncovering the Themes of Aphasia AwarenessIn the final episode of Series 1 of 'On the Tip of My Tongue,' hosts Rob Edwards and Jonathan Hirons review the key themes and insights from their podcast series dedicated to raising awareness about aphasia. They discuss the stigmatization and misunderstandings surrounding the condition, share personal s
Understanding Mental Health: Is It Just Health? - with Dr Trevor Powell
Send us Fan MailIntertwined Health: Neuropsychology, Brain Health, and Insights from Dr. Trevor PowellIn this episode of 'On the Tip of My Tongue,' Dr. Trevor Powell, a consultant clinical neuropsychologist, discusses the interconnectedness of physical and mental health, emphasizing how psychological processes influence physical conditions. He addresses the stigma surrounding mental heal
On the tip of my tongue : Series 1 Episode 4 - Carers with Ann Hirons
Send us Fan MailCaring for Loved Ones with Aphasia: A Personal Journey with AnnIn this episode of the 'On the Tip of My Tongue' podcast, we welcome Ann, Jon's wife, to discuss her experience caring for a partner with aphasia following his stroke. Ann shares her professional background in psychology and addiction therapy within the NHS, which provided her some tools in managing Jon&a
On the tip of my tongue: Series 1 Episode 3 - Caring and carers - Michael Shann
Send us Fan MailSupporting Carers: Insights and Initiatives from Carers UKIn this episode, Michael Shann, head of carer support at Carers UK, discusses his 12.5-year journey with the charity, highlighting its mission to improve the lives of carers. He provides an in-depth overview of the services offered, including a helpline, online and in-person meetups, and various support resources. Michael al
On the tip of my tongue: Series 1 Episode 2 - Living with Aphasia and Charities
Send us Fan MailUnderstanding Aphasia: A Deep Dive into the Hidden DisabilityIn this episode of the 'On the Tip of My Tongue' podcast, hosts Rob Edwards and Jonathan Hirons discuss aphasia, a little-known yet common condition affecting language and communication due to brain injury. They chat with Barbara Chalk, a retired speech and language therapist and trustee of the charity Say Aphas
On the tip of my tongue: Series 1 Episode 1 - Living with Aphasia
Send us Fan MailUnderstanding Aphasia: Personal Journeys and InsightsIn this episode of 'On the Tip of My Tongue,' hosts Rob Edwards and Jonathan Hirons delve into the challenges and experiences of living with aphasia, a language disorder caused by brain injury. Jonathan shares his personal journey following a stroke, highlighting the struggles and the gradual recovery process. The discu
